中文摘要：

目的了解唇腭裂患儿父母生活质量现状，确认其影响因素，为改善唇腭裂患儿父母生活质量提供理论依据。方法选取行一期唇腭裂畸形整复手术患儿的家长143例作为病例组，109例正常成年人作为对照组，2组均接受一般情况问卷、生活质量综合评定问卷（GQOLI-74）、社会支持评定量表（SSRS）的测评。对2组的结果进行统计分析，并对可能影响生活质量的各因素进行多元线性逐步回归分析。结果1）病例组生活质量总分、心理功能维度、社会功能维度、物质生活维度得分均低于对照组（P〈0．05）。2）病例组社会支持总分、主观支持维度和社会支持利用度维度得分均低于对照组（P〈0．05）。3）病例组社会支持总分、客观支持维度得分、主观支持维度得分与其生活质量总分及各维度得分均成正相关。4）影响病例组生活质量的相关因素为社会支持和人均月收入。结论唇腭裂患儿父母生活质量及社会支持情况偏低，应给予其更多的支持与帮助，提高其生活质量。

英文摘要：

Objective To investigate the life quality and their influence factors in cleft lip and palate parents and to provide evidences for improving the life quality of the parents. Methods One hundred and forty-three parents whose children accepted the primary surgery of cleft lip and palate were selected as the case group, and 109 normal adults as the control group. Both groups were investigated by 3 questionnaires that included questionnaire of general status, generic quality of life inventory-74 （GQOLI-74）, social support rating scale （SSRS）. The results of two groups were analyzed and the influence factors on life quality were studied by stepwise multiple regression analysis. Results 1）The scores of the life quality, mental function, social function, material life in the case group were significantly low com- pared with the control group（P〈0.05）. 2）The social support total scores, subjective support and utilization of social sup- port were lower than the control group（P〈0.05）. 3）Social support, objective support, subjective support positively corre- lated with life quality scores and every dimension score in the case group. 4）The relevant factors affecting life quality were social support and income. Conclusion The life quality and social support of cleft lip and palate patients is poor, we should give more support and help to improve their life quality.