中文摘要：

罕见病是指发病率极低的疾病，从风险特征看，罕见病风险属于不可分散性风险。罕见病保障属于社会准公共品，需要政府干预，医疗保障制度应采用以纳入国家医疗保险体系为主、财政资金救助体系为辅的组合式社会保障政策模式。

英文摘要：

Rare diseases refer to these with extremely low incidence. The risk of rare diseases is inseparable. It needs government＇s intervention since their security belong to social public goods. Medical security system for rare diseases should be a combined social security policy model, which makes national health insurance system playing a main role and the financial assistance system playing a complementary role.