目的:了解门诊原发性干燥综合征(pSS)患者就医及延误诊断情况。方法:对我院门诊就诊的224例pSS患者进行随机现场调查。结果:224例pSS患者中,37.9%的pSS患者首次就诊于风湿免疫科,62.1%患者首次就诊于其他科室;患者平均延误就诊(4.3±1.2)a,16.1%曾被长期误诊为其他疾病,63.8%患者未被及时诊断。结论:pSS患者首次就诊在风湿免疫专科比率低,就诊及确诊均存在时间延误,迫切需要我们提高对该病的认识。
Objective:To quantitatively describe the behavior and situation of Sjogren's Syndrome (SS) patients in a Teaching Hospital of Beijing. Methods :Patients diagnosed with Sjogren's Syndrome were investigated in our hospital. Results:In this 224 SS cohort, about 62.1% patients first entered the wrong departments, 16.1% were diagnosis not correctly for a long time. 63.8% patients were delayed to be diagnosis as SS. Conclusion:There usually delay between the symptom and diagnosis, we must pay more attention the increase the recognition of the diease.