免疫性血小板减少症(ITP)是儿童常见的出血性疾病。因为血小板减少、出血、疾病预后、治疗的不良反应、活动受限等问题,常导致患儿及父母的生活质量显著降低。现就国内外儿童ITP的生活质量作一述评,以引起更多关注和重视。在ITP治疗抉择和管理时,应将健康相关的生活质量作为重要参考指标之一。
Immune thrombocytopenia (ITP) is a common bleeding disease in children. Recent advances has indicated that such factors as decreased platelet, fear of bleeding, prognosis, therapy associated side effect and restricted activities, usually decreased quality of life of patients and their parents. This review focuses on domestic and overseas re- searches on health -related quality of life (HRQoL) in children with ITP,in order to attract more scholars' attention. HRQoL should be recommended as an important indicator in treatment and management of ITP.